
Donation for the "Orphans of Medicine"
And once again we were able to bring joy to people with a special ordeal. Prof. Berneburg from the Association for the Promotion of Rare Diseases at Regensburg University Hospital visited us in Abensberg today. In a moving conversation, we talked about the orphans of medicine. We speak of rare diseases when there are no more than 5 affected persons/10,000 inhabitants. Over 4 million people in Germany suffer from a rare disease. On average, their ordeal lasts 7 years before the disease itself is even recognized. But even with a diagnosis, there is little help because research by the pharmaceutical industry is not profitable and is not publicly supported. Medical care is extremely difficult, especially in times like these. Networking and awareness, even within the medical profession, is unfortunately still very rudimentary.